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CAPS Stories




One of the Principles, Values and Beliefs of Consumers Advancing Patient Safety is to foster effective partnerships and collaboration to improve consumer involvement in patient safety improvements. CAPS members who have experienced medical harm/error (sometimes referred to as adverse events or healthcare system breakdowns) are invited to share their story with CAPS.

By filling out this form, you can participate in a global network of consumers who want to become part of a healthcare team to promote patient involvement in patient safety and help bring about positive change in healthcare. You can contribute your experience to serve as a collective “voice” for individuals, families and healers who wish to prevent harm in healthcare encounters through partnership and collaboration.

The CAPS story collection wishes to hear from “ALL” individuals who have a stake in improving the safety of healthcare. This includes consumers, patients, healthcare professionals, researchers, policy makers and others who have experienced adverse events or harm.

Please describe for us briefly in the form below your experience with healthcare that began your involvement with the patient safety movement. Be as clear and brief as possible with your answers.

Include the information that you feel would be most useful to another individual or organization looking at your experience and how it might provide insight to their situation. You can either contribute to this collection anonymously or —be active as a mentor by providing basic contact information so the web site visitor reading your story may contact you directly.

By sharing your experiences, CAPS hopes to share your wisdom and knowledge by supporting the spread of new ideas throughout healthcare. Your participation is very important and appreciated. We hope that you will find value in this resource, both in promoting your success and in generating ideas for future projects.

We thank you in advance for your time.


Download the CAPS Story Form


  • Describe with some detail your experience with the healthcare system, government agencies, nonprofit/non-governmental organizations, the media or other organizations/individuals to help improve patient safety. Also describe the ways in which you partnered or tried to partner with others. What were your aims? How did you proceed? What progress or accomplishments have you made as a result of your efforts?
  • What are the most important lessons you’ve learned during your experiences outlined in the first question?
  • What are the biggest challenges you experienced in trying to be a change agent? Please tell us how you met those challenges.
  • In your view, what are the most pressing issues in the healthcare system regarding patient safety? What actions do you think should be taken to improve patient safety?



CAPS Featured Story

Leslie Worthington Fights for Patient Safety in Manitoba, Canada, A CAPS Feature Story



You will need version 8 of the Adobe Acrobat Reader to access and use this form.  You can download it below.

Download the CAPS Story Form


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Copyright 2007 Consumers Advancing Patient Safety
Last updated: November 24, 2008