2/20/12 - February 20, 2012

New Patient-Centered Outcomes Research Institute invites Public Comment at February 27, 2012 Forum

On February 27, 2012 the new Patient Centered Outcomes Research Institute (PCORI) will hold a forum to increase awareness of its work and obtain public input and feedback about its priorities, standards, peer review processes and communication strategies.  Input from patients, health care providers and other stakeholders is invited by webinar and or telephone.  You can register to attend and provide public comment here.

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PCORI is an independent non-profit organization that promises to be a significant source of funding for research on patient safety, health care quality and patient-centered care.  It was established by Congress in 2010 as part of national health reform.  Its mission is to help people make informed health care decisions by producing and promoting high integrity, evidence-based information that comes from research guided by patients, caregivers and the broader health care community.   

PCORI is committed to transparency and a patient engagement in all aspects of its work. Patient-centered outcomes research is designed to inform health care decisions by providing evidence on the effectiveness, benefits and harms of different treatment options for different patients. The evidence is generated from studies that compare drugs, medical devices, tests, surgeries or ways to deliver health care. This research recognizes that the patient’s voice should be heard in the health care decision making process. PCORI’s research will be responsive to the preferences, values and experiences of patients in making health care decisions and the impact diseases and conditions can have on daily life.

PCORI will hold a National Patient and Stakeholder Dialogue on February 27, 2012 to  present it's Draft National Priorities and Research Agenda and welcome three and a half hours of public comment by individuals attending in person and by phone.   In addition, there will be two moderated discussion panels on the priorities and agenda featuring patient and caregiver advocates, clinicians and other stakeholders.

 

The event is part of PCORI's effort to receive broad public input before the comments are considered in a process to revise and adopt the priorities and agenda. An event schedule is provided below. We hope you will register today to watch via webcast or listen by telephone. You can register to attend and provide public comment here.

 

If you have any questions, email PCORI at info@pcori.corg.

 

What:     PCORI National Patient and Stakeholder Dialogue

When:     Monday, February 27, 2012

                 9:30 a.m. - 5:00 p.m. EST

Where:   The National Press Club

                 529 14th St., NW
                 13th Floor

                 Washington, D.C.

 

Event Schedule

 

9:30-9:45             Welcome and Introduction by PCORI Executive Director Joe Selby

9:45-9:55             Overview of PCORI’s input process on the draft National Priorities for Research and Research Agenda

9:55-10:15           Overview of PCORI’s draft National Priorities for Research and Research Agenda

10:15-11:00         Patient and Caregiver Advocate Discussion Panel

11:00-11:15         Break

11:15-12:00         Clinician and Stakeholder Discussion Panel

12:00-1:00           Lunch (provided)

1:00-4:30             Public comment (in person and by phone)

4:30-4:55             Observations from PCORI Board Members

4:55-5:00             Closing Comments by PCORI Executive Director Joe Selby

 

Webcast and Teleconference details will be circulated and posted on the PCORI (www.pcori.org) and CAPS (www.patientsafety.org) websites prior to the event.